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Fundraising appeal to help sick kids like Telarah’s Koby Adams

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An annual fundraising appeal will help the John Hunter Children’s Hospital fund an at-home assessment program for kids with sleep disorders.

The Curing Homesickness campaign, in all Coles supermarkets throughout the region from now until Tuesday 28 March, is set to benefit many local youngsters, including Telerah’s Koby Adams.

The 10-year-old was born with a rare and complex condition known as Zellweger Spectrum Disorder, which affects his breathing during sleep and requires Continuous Positive Airway Pressure (CPAP) therapy to support his airway at night.

Koby Adams (centre) with brothers Liam (left) and Jake (right).

As a result, Koby has spent much of his young life attending hospital appointments and undergoing numerous tests and procedures.

That includes regular sleep studies at John Hunter Children’s Hospital to monitor his breathing, oxygenation and patterns.

His mother, Ashlyn, admitted a visit to the Sleep Clinic had always involved an overnight stay in hospital with a number of cumbersome sensors attached to his head and body.

“Koby’s condition means he is very sensitive to touch and changes to his environment and routine, which makes these regular visits to hospital very stressful for him and our family,” she said.

“Ever since they developed a new at-home sleep system that he could use from the comfort of his own bed, it’s taken the stress and anxiety out of a hospital visit.

“The remote sleep monitoring system allows Koby to complete testing quickly and have his CPAP adjusted without having to wait for a hospital bed, while allowing the hospital team to closely monitor his progress remotely.”

Koby Adams at home with the sleep testing kit.

Shoppers can support Curing Homesickness by purchasing a $2 donation card at the checkout or by making a donation of their choice at a supermarket or via Coles Online.

Additionally, customers are able to pick up a specially-marked Mum’s Sause pasta or pizza sauce, with 50 cents from each product sold year-round going to the cause.

Hunter New England Local Health District executive director for children, young people and families Dr Paul Craven said money amassed for the John Hunter Children’s Hospital would make a huge difference.

“The Curing Homesickness appeal raises much-needed funds that enable us to improve patient experiences and rethink the way we deliver healthcare,” he explained.

“With the support of Coles, we’ll be able to conduct sleep studies remotely, meaning more children and young people can be assessed and diagnosed sooner from the comfort of their own home –

reducing travel time, unnecessary hospital admissions, anxiety and disruption for many families.”

Since 2019, funds have helped John Hunter Children’s Hospital to expand its Hospital in the Home service and establish an early transfer home service for Neonatal Intensive Care Unit patients.

Coles state general manager Ivan Slunjski said they were proud to continue their support for Curing Homesickness.

“Coles stores and team members across NSW are thrilled to get behind this year’s appeal because we know that every cent raised is going to make a big difference,” he added.

“Our partnership with Curing Homesickness has already raised more than $2 million for the Sydney Children’s Hospital Foundation and the John Hunter Children’s Hospital in just four years and we encourage our customers to continue to get behind this great cause.”

  • Coles supermarkets raising funds for John Hunter Children’s Hospital: Forster, Taree, Old Bar, South West Rocks, Kempsey, Lighthouse Beach, Lake Innes, Laurieton, Port Macquarie, Wingham, Inverell, Moree, Gunnedah, Glen Innes, Tenterfield, Tamworth South, Armidale, Tamworth, Narrabri, Tamworth, Cessnock, Green Hills, Scone, Fletcher, Singleton, Rutherford, Kurri Kurri, Thornton, Muswellbrook, Huntlee, Waratah, Newcastle Junction, Wallsend, Kotara, Tanilba Bay, Marketown, Tea Gardens, Mayfield, Lake Macquarie, Medowie, Salamander Bay, Swansea, Belmont, Toronto, Edgeworth, Warners Bay, Glendale, Morisset, Charlestown, Jewelstown, Bonnells Bay

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