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Sunday, July 25, 2021

A father’s plea to help his daughters

As most parents would know, there is nothing you wouldn’t do for your child. 

That’s no different for Cameron Park’s Nic Mills – he urgently needs to raise funds to keep his daughters, Leanna and Bethany, alive. 

The siblings were just like any other children, until they were two and four.

As toddlers they began battling early-onset generalised dystonia, a movement disorder that causes muscles to contract and spasm involuntarily. 

In 2005, the family travelled to France to undergo a surgery that would change their lives. 

The pair had a Deep Brain Stimulus implanted, with the device producing electrical impulses to reduce the twisting and contorting of their muscles. 

While it has helped them dramatically, Leanna has faced another battle.

On top of the dystonia, she is also suffering from Parkinson’s disease. 

After leaving his job when the girls were younger to become a full-time carer, Nic is asking the community for help to raise funds to cover the cost of their needs. 

Leanna and Bethany require regular physiotherapy and occupational therapy sessions, various medications, trips to doctors and their specialists in Sydney, health insurance, and other equipment.

“For medical costs it’s more than $4,800 each a year but that isn’t everything,” Nic said.

“Sometimes the NDIS doesn’t cover everything we need for the girls in terms of equipment and medication, so we have to have ongoing help full-time to raise money for them. 

“These costs are lifelong and constantly increasing.

“We need all the help we can get because this is a very unique case where our two daughters cannot go to any hospital or any specialists, it’s only certain ones who can help them.”

Nic says he doesn’t like to think about what will happen if they can’t raise the funds.

“I am positive that we will raise enough money.”

He adds, aside from seeing them in pain, the most difficult thing about what they’re facing is the reason that caused it. 

“The hardest part is not knowing 100% what has caused the medical condition, only having symptoms and not a diagnosis, all the tests we’ve got back just say normal,” he said.

“We’re also trying to get Leanna up and going, we’re putting our hearts into that as well but we still don’t know exactly what’s going on.”

To help raise the funds Nic has started a GoFundMe page, they’ve also become a registered charity and accept donations via bank transfer. 

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